Sunday 26 October 2014

The Unpredictable Side of M.E

M.E is a fluctuating illness and aside from suffering from payback after activity, good days and bad days tend to come as they please. 

It's hard to plan ahead because you never know how you will be but at the same time, you have to plan ahead so that you can rest beforehand. Even then, resting before an activity doesn't guarantee you'll be well enough to do it. This often leads to suffers having to cancel plans last minute or stop what they are doing to rest, sit down or take time out.

As an ME sufferer I think something that really helps is having an understanding family and friends. If the people around you understand that you could suddenly feel very ill, it can help to make you feel more relaxed and comfortable. It's always good to have a plan B incase you are not well enough to do the original activity. 

It is important to remember that if you are around an ME sufferer who has to sit down or stop an activity that it is not their fault and that they cannot predict or control this. It is important for family and friends to be able to accept changes in plans and be flexible. 

I think I can speak for all sufferers when I say that the last thing we want is to have to change or plans because of how we are feeling. 

It's scary to think that you could feel really ill when you are out or if you are alone and that you don't know how you are going to feel in a few minutes, hours, days, weeks etc. 

One minute I can be fine (well not fine but okay) then the next I feel awful. 
I'm not talking about payback because feeling bad after doing something is expected and means that you have had fun rather than feeling rubbish for no reason. Payback is expected but you can't see all bad spells coming which is why suffers can find it hard to hold down a job or have a regular college/school/uni attendance. Pacing obviously helps but it cannot guarantee than you won't feel ill for no reason. 

How do you cope with the unpredictable side of M.E? Is there anything you like to have to hand for when a bad spell strikes? 
Wednesday 1 October 2014

September Favourites

Beauty 

I am so in love with the Revlon Just Bitten Kissable Balm Stain in Crush. This was new to me at the beginning of the month and i love how it is a dark berry shade without looking too dark or gothic. It's super wearable and perfect for the day time.



 
I had a sample of the New Charity Pot from Lush in with my birthday present from my friend Charlotte and loved it so much that I went and bought the biggest tub they do. It is quite thick so you probably wouldn't need to use it all over, every day but it's great for super dry patches like elbows and feet and is surprisingly even more moisterising than any BodyShop body butters I've tried.

 

Something else that I love from Lush is The Comforter Bubble Bar which smells of raspberries and sweets and turns your bath pink and super bubbly - what's not to love? Sorry I don't have a picture of it, I've used most of it up! 

Achievements

I baked two cakes this month, a lemon drizzle and a Victoria sandwhich cake, went shopping three times, went to a garden centre for lunch and went to a Macamillan coffee morning. I'm super impressed with how much I've done this much and really pleased I managed it all and feel really grateful to of had such a good month! 


The lemon drizzle cake I made 


Things I'm looking forward to next month

October is one of my favourite months and I'm really looking forward to Halloween! I love Halloween so I'm hoping to bake something Halloween related and maybe dress up a little bit... 

I'm hoping to go out shopping a couple of times too and to my favourite place for a hot chocolate with my mum and nan! Sorry I don't really have many new favourites this month. A lot of the books I have read haven't been very good! 

How was your September?