Saturday, 11 May 2013

12th May 2013 - ME Awareness Day and frustrations

Hey guys
I'm so sorry that I haven't been posting much recently. I've been so ill and so busy with exams and school work.

Tomorrow is ME awareness day so I thought I'd just have a little ramble about how ME affects me.

ME affects everything I do. I get so frustrated because I don't have much control over my body or my symptoms and it's so annoying! I get frustrated that I can't do the things that I want to do and I get really upset that I am missing out.

I don't have the life of a normal teenage girl and I can't go to school. I don't have many friends and I can't do a lot of the things that I enjoy; like going out shopping etc.

ME has affected the way I look. I can't shower everyday and I don't wear make up very often even though I really want to. I love make up and beauty and read tonnes of beauty blogs and I watch loads of beauty YouTubers but ME means that I can't portray my interests in my appearance.

I have to wear comfy clothes because of the pain and fibromyalgia and I have also put on a lot of weight through not being able to exercise.

ME has affected my friends and family and it has affected things like birthdays, Christmas, holidays and days out. There is so much to think about when you have ME and you can't just go out and do something. You have to rest beforehand and make sure you have a free day(or more, depending on what you are doing) to rest afterwards.

Sometimes I can't read or watch TV because I makes me too ill.

I get a lot of pain which is really scary and really affects me because I don't know what is going on inside my body and I don't know if the pain is going to get better, get worse or whether it's something else, not fibro.

There are so many factors that can determined how sick you are feeling everyday and it's really unpredictable because sometimes if it's really hot, I get more exhausted and the sun can make me ill. The weather can change how you feel and so can different emotions. I get too excited or nervous or angry or anything like that, I can end up feeling really ill so I try to stay as calm as I can.

If you don't have ME, I hope this has helped you to understand a little bit more about how it affects us. Obviously some people have it worse than others and it affects everyone in different ways. Happy ME awareness day for tomorrow!!


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