I need a day off. Please?

I got a diagnosed about a year ago. It was the last week of October 2011. (I cant remember the exact date!) I cannot believe it has been a year and that I have been ill even longer.

Feeling this ill for a whole year. Every single minute of every single day.

I can tell you, that right now, I just want a day off. I am feeling extremely annoyed and restless. Why can't us spoonies have a day off every now and again?

Please.

Pretty please.

I need a day off.

I just want one day where I don't feel like I have the flu. I just want one pain-free day.

Please.

I hate feeling dizzy, I hate the nausea. I hate the headaches, the pain, the weakness, the tiredness, the exhaustion, the tachycardia, the sensitivity to light, sounds and smells.

I hate that it just won't stop or go away.

Okay, even just having exhaustion and pain. That would be like a day off. I'd be okay with that. But, please. I just need a holiday. I want to feel well for Christmas.

I NEED to be well for Christmas.

I cant cope with feeling this ill. I cannot even describe to you how rubbish i feel.

School children have days off. The have weekends and holidays. People get time off from work so why cant someone make us better just for one day?

Why won't it stop?

Why won't it go away?

I want to be a normal teenager and I want to feel well, just for one day.

ME is kicking my butt right now

I feel so unbelievably ill.

I shouldn't even write because I'll probably depress you all but..

I had THE WORST nights sleep ever last night.

I felt so poorly.

Now I feel awful and I have so much that I need to do.

I want to sit in the garden for a bit to get some fresh air (maybe it will make me feel better?) but my legs are too weak to carry me there.

I need to have a shower and wash my hair but I don't feel well enough.

I feel like death warmed up. Except I'm freezing cold!

Everything hurts.

I have no energy.

Am praying that I sleep better tonight

Invisible illness week 2012

Hey guys

National Invisible Chronic Illness Awareness Week is held annually in September and is a worldwide effort to bring together people who live with invisible chronic illness and those who love them. This year, National Invisible Illness week is taking place 10-16th of September (I know I'm a bit late!)

As you all know, I have ME. ME is an invisible illness. I get told all the time that I look healthy and well, when i feel absolutely horrid. Just because I don't look ill, it doesn't mean that I don't feel it.

I feel like I've got the flu all of the time. I feel sick, I get headaches, I ache, I am in pain, I'm exhausted, I feel like I'm gonna pass out, I feel dizzy. You cannot see any of these things. But that does not mean that they are not there.

If you know someone that has an invisible, chronic illness, please do not tell them that they are looking well. Don't assume that just because they have put a bit of make up on, and got dressed for the day that they are feeling fine.

We are in pain all of the time. We feel constantly exhausted.

It never goes away.

Please go to
http://invisibleillnessweek.com/
for more info

Photo summery of Summer 2012

Hey guys, today I thought I'd show you some photo's as a sum up of my summer 2012. Hope you enjoy!

This is my sister's new guinea pig, Clover. We got her at the beginning of August!

This is Daisy, Clover's sister.

This is another of our new guinea pigs, Lightening. We got him a couple of weeks after the other two!

This is me, my dad, my brother, my sister and my best friend Lucy when we went to see the Olympic Torch Relay.

This is the snail i painted the other week when i went to an art's and crafts place to paint ceramic's. (picture taken before it has been glazed.. or whatever you call it!)

This is just a picture of moi....

This is me (messy hair!) and my baby cousin Cooper when he was 4 days old.

These are my nails that i wore for the Queen's Jubilee in June! Funky, eh?!

This is Thunder, another new baby guinea pig!

And... this is me, Lucy and my nan at my birthday party in June! Sorry that these arent in any particular order. I did do some other stuff that i didn't manage to take photo's of! A girl can't take her camera everywhere.... *sigh*

Garden Centre Adventure

Hey guys

On Thursday I went out to a garden centre with my grandparents.

We walked pretty far (too far probably) and so the past couple of days, I've felt really poorly.

I so wish that I'd of taken my purse there because there was lots of lovely things to buy but I just didn't think! There were some really gorgeous fashion scarves, loads of different styles, prints and colours and I really wanted one! Also there were loads of candles, including a Yankee stand and lots of bath goodies like little hand-crafted bath bombs. There were bath bombs shaped like butterflies, like cupcakes, like flowers, there were sparkly ones and loads of different colours! Gorgeous!

There is also a craft shop which I could of spent ages in and lots of different bits and bobs like sweets, books, plants etc!

There was some stationary and a few 'back to school' bits that made me kinda sad because I used to love getting ready for a new school year. I used to love buying new stationary and sharpening my pencils ready, clearing out my pencil case and wearing new shoes in. It's sad that I have to talk about that in the past tense but maybe some day I'll go back to school...

Anyway,

We then drove round for a bit, had some lunch and went home.

I honestly don't think I have walked that far for at least 6 months, probably longer but I was standing up for ages too! I really should of taken my wheelchair, silly me!

Anyway, so I've spent today and yesterday pretty much doing nothing apart from resting. I've felt so ill and had bad payback but I guess that's to be expected and I did have a really good day so it was worth it!

Today my best friend Lucy is round and we were planning on going out someone but I'm not well enough so we're having a chilled day at home.

Hope you are all well. What have you been up to?